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NEWS
Latest News
Advances in HS Pathogenesis and Therapies from SHSA 2023 Published in the Journal of Investigative Dermatology
July 23, 2024
SHSA 2023 Findings Published in JID
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Benefits of the Mediterranean Diet and Physical Activity in HS
January 2, 2024
Can Diet and Physical Activity Improve Your HS?
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Barriers to Accessing Care for HS
September 7, 2023
Patient interviews highlight challenges in accessing HS care
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Genetic Variants Associated with Hidradenitis Suppurativa
August 27, 2023
Two genes identified as likely associates with HS
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Assessing the Impact of HS on Work Productivity
August 22, 2023
Study demonstrates decrease in work productivity due to HS
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What is Pain Really Like for People with HS
June 8, 2023
Initial HS lesions present with itch, but can progress to pain.
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Average Time Patients Stay on Biologic Treatment
June 8, 2023
Study Shows Treatment of HS is Challenging
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Bimekizumab and HS
May 3, 2023
Safe and Effective Results Shown with Bimekizumab in Phase II Studies
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Birth Control and HS
April 11, 2023
Small study shows birth control pills may be useful in the treatment of HS
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Benefits of Finasteride in Women with HS
March 9, 2023
Can finasteride help control hidradenitis suppurativa in women?
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Biologic Therapy Not Associated with COVID-19 Severity
February 1, 2023
Biologic Therapy Not Linked to COVID-19 Severity in People With HS
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HS Foundation’s HS CAPE (Community Awareness and Patient Empowerment) Program Request for Proposals
January 9, 2023
The goal of the CAPE grant is to stimulate the development of programs that increase disease awareness, provide support to patients and caregivers, improve patient care or benefit patients with HS in other ways. Typical awards will be for up to $2,000 but proposals for up to $5,000 will be considered (direct costs only, regardless of the amount of the award). Award amount is contingent upon the availability of funds and the receipt of sufficiently meritorious applications.
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Interview with 2021 HSF Danby Grant Recipient Dr. Carmelo Carmona-Rivera, PhD
December 1, 2022
Learn about 2021 Danby Grant Recipient Dr. Carmelo Carmona-Rivera, PhD and his winning project which aimed to find disease-causing interactions between cells or between cells and NETs.
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Interview with 2017 HSF Danby Grant Recipient Amanda Nelson, PhD
December 1, 2022
Learn about 2017 Danby Grant Recipient Amanda Nelson, PhD and her winning project which investigated whether skin stem cells were misplaced and abnormally active in HS lesions.
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Adalimumab (Humira) in combination with surgery is safe and effective to treat hidradenitis suppurativa.
December 1, 2022
This study explored whether it was safe for patients to undergo skin surgery while on adalimumab.
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A new treatment option for tunnels in HS
December 1, 2022
An Open-Label, Prospective, Pilot Study of Hypertonic Saline for Hidradenitis Suppurativa.
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Interview with 2018 HSF Danby Grant Recipient Angel Byrd, MD PhD
October 4, 2022
Learn about Danby Grant Recipient Angel Byrd, MD PhD and her winning project which aimed to establish a biorepository of HS tissue samples to better understand the disease.
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Interview with 2020 HSF Danby Grant Recipient Dr. Lauren Orenstein
October 4, 2022
Learn about Dr. Lauren Orenstein's Danby Award-winning project which studied patterns of health care utilization and opioid prescription use among patients with hidradenitis suppurativa.
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HSF Career Development Award through the Dermatology Foundation
September 26, 2022
Career Development Award
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2019 HSF Danby Grant Awardee Dr. Abrar Qureshi Interview
August 9, 2022
HSF Danby Grant Funding Helps Develop a Useful Screening Tool for HS
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View the latest research summary from the HS Foundation
August 4, 2022
A number of medical conditions are associated with HS - what are they?
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Factors that affect delayed HS diagnosis in children and teenagers
June 21, 2022
What happens if hidradenitis suppurativa (HS) diagnosis is delayed in children?
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2022 Danby Awards
June 3, 2022
The HSF is pleased to announce the awarding of four Danby Research Grants in 2022, the most ever offered by the Foundation. These researchers are proposing exciting research initiatives in HS.
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Interview with 2018 Danby Grant Recipient Dr. Tina Porter
June 3, 2022
Dr. Alexander Charrow interviews Dr. Tina Porter, assistant professor at Harvard Medical School and 2018 Danby Grant Recipient, about her research on treating hidradenitis tunnels.
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HS surgeries associated with high satisfaction, brief recovery and tolerable pain
June 2, 2022
Considering surgery for treating hidradenitis suppurativa (HS) can feel intimidating, especially because it can be hard to know what to expect.
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Negative Impacts of Hidradenitis Suppurativa in Pregnant Women
June 2, 2022
Women with HS were more likely to have health problems before pregnancy compared to women without HS.
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An Interview with 2019 Danby Research Grant Awardee John Frew, MBBS, PhD
June 2, 2022
Get to know the 2019 recipient and how his project aimed to identify potential clinical and therapeutic biomarkers of HS disease activity.
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HSF Installs New Officers and Board Members at its March Board Meeting
April 6, 2022
During the recently held American Academy of Dermatology annual meeting in Boston, the HSF Board of Directors met and installed three new board members, as well as new officers. Dr. Joslyn Kirby will serve a two-year term as president.
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A Deep Look at the Bacteria Living in Patients with HS
February 28, 2022
This research study explored the differences in the microbiome between unaffected individuals and those with HS by obtaining bacterial swabs from the skin, inside the nose, and stool from both groups.
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Can Hidradenitis Suppurativa Affect Pregnancy?
August 30, 2021
Research on how HS affects pregnancy is limited, which is what led researchers at Penn State College of Medicine to perform a study that compared pregnancy outcomes in patients with and without HS.
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Hidradenitis Suppurativa Foundation Danby Research Grants
May 25, 2021
For the past five years, the Hidradenitis Suppurativa Foundation (HSF) has proudly sponsored up to $10,000 for research projects that will have a sustained, powerful influence on our understanding of hidradenitis suppurativa (HS).
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Clinical Epidemiology and Management of Hidradenitis Suppurativa
April 1, 2021
Understanding hidradenitis suppurativa clinical epidemiology and management facilitates early diagnosis and treatment, thereby reducing morbidity with the potential to favorably alter disease trajectory.
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How should Pregnant and Nursing Mothers manage Hidradenitis Suppurativa?
February 28, 2021
With a growing need to properly manage HS in pregnant and nursing mothers, here we discuss the article “Management of Hidradenitis Suppurativa in Pregnancy” published in 2017 that provides the most up-to-date information.
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How clear is the link between Hidradenitis Suppurativa and Inflammatory Bowel Disease?
February 19, 2021
Some research studies showed the HS and IBD are more likely to happen together, but two other studies did not show a link between them. The goal of this study was to combine all of the best studies and try to clear up whether there is a link between HS and IBD.
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Comorbidity screening in hidradenitis suppurativa
January 22, 2021
Systematic reviews were performed to summarize evidence on the prevalence and incidence of 30 comorbidities in patients with HS relative to the general population.
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COVID-19 Vaccines: Information for People with HS & their Caregivers
December 19, 2020
We know that you and your family probably have many questions about the COVID-19 vaccines that are being approved by the U.S. Food and Drug Administration (FDA). We are here to help and provide you with the most current information.
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How are Emergency Departments treating pain in Hidradenitis Suppurativa?
November 18, 2020
For many patients with Hidradenitis Suppurativa (HS), pain is a problem that can lead to visits to the Emergency Department (ED).
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Are people willing to use teledermatology for Hidradenitis Suppurativa care?
June 5, 2020
In new, yet unpublished data from a project by Joslyn Kirby, Ashley Eichelberger, Melissa Butt, Colleen Silva, and Aretha Mosley of Penn State Hershey School of Medicine, patients shared their thoughts and experience about long-distance dermatology visits.
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The Hidden, Common Disease You've Never Heard Of
June 2, 2020
In today’s informed and connected world, it’s hard to believe there might be common diseases that you have never heard of.
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6 Myths about Hidradenitis Suppurativa
June 1, 2020
We addressed 6 myths about Hidradenitis Suppurativa
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Is COVID more risky for people treated for an immune disease?
May 22, 2020
In a study led by Dr. Rebecca Haberman of New York University, a group of doctors studied whether people being treated for immune diseases had more severe COVID.
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What is the right dose of infliximab for Hidradenitis Suppurativa?
April 20, 2020
Infliximab is an intravenous (IV) medication that can help Hidradenitis Suppurativa (HS). The dose and timing of infliximab vary. The authors determined which dose was the best when starting treatment for HS.
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Global Registry for Hidradenitis Suppurativa + COVID-19
April 17, 2020
International HS experts have recently established the Global HS COVID-19 Registry to better understand the risk of infection and clinical course of HS patients in the setting of COVID-19.
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Anything new out there to help treat my HS?
April 11, 2020
In recent years, research has led to a deeper understanding of immune imbalances that may lead hidradenitis suppurativa (HS).
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Frequently Asked Questions about Hidradenitis Suppurativa (HS) and COVID-19
April 6, 2020
What is COVID-19, and how is it different from the flu or other infections we have dealt with?
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A new way to measure the extent of patients’ hidradenitis suppurativa
March 31, 2020
This study was done by researchers in the U.S.A. to find how well clinicians could measure HS using a different approach.
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COVID-19 & Hidradenitis Suppurativa Podcast
March 24, 2020
HSF partnered with LearnSkin on a special podcast episode to bring expert insight into what COVID-19 means for dermatologists and their patients with Hidradenitis Suppurativa.
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Plastic Surgical Management of Hidradenitis Suppurativa
March 10, 2020
Successful treatment of hidradenitis suppurativa requires a multidisciplinary team approach and multimodal therapy.
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New drug shows promise for Hidradenitis Suppurativa treatment
February 27, 2020
An early study for bermekimab shows improvement in Hidradenitis Suppurativa (HS) activity and pain scores while demonstrating safety.
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A study into the risk of serious infections in people with hidradenitis suppurativa
February 3, 2020
This study's aim was to determine if associations between HS and various serious infections exist, using the National Inpatient Sample, a USA database of inpatient hospitalizations, between the years 2002 and 2012. The study also looked into the cost of care and length of stay of HS patients with serious infections.
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Pain perception and depression in patients with hidradenitis suppurativa
January 2, 2020
HS causes pain, but few studies have looked at this aspect. The authors aimed to study pain in patients with HS.
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A review of use of the word ‘flare’ in hidradenitis suppurativa studies
January 2, 2020
HS lesions can come-and-go or last for months or years. HS can have times where it is worse than usual. These have been called ‘flares’. To measure flares in future studies, a definition for a flare is needed. This study was done to find out how flares were defined in past studies.
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Incidence of Myocardial Infarction and Cerebrovascular Accident in Patients With Hidradenitis Suppurativa
November 13, 2019
New findings, recently published in JAMA Dermatology, appear to show that having HS confers a modest risk of having a heart attack or a stroke.
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Most Hidradenitis Suppurativa patients improve with infliximab, if the dose is high enough
October 4, 2019
Some Hidradenitis Suppurativa patients improve when they receive infliximab, but we don’t know the proper dose of infliximab to give. This research asked whether high-dose infliximab helps Hidradenitis Suppurativa patients.
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Inter-rater reliability and agreement hidradenitis suppurativa instruments
September 1, 2019
This study aimed to find out how consistently 12 HS-experienced dermatologists would score 24 patients with HS, using nine different instruments.
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Investigation of the skin microbiome
September 1, 2019
Researchers from Sweden, Ireland and the UK looked at the difference between the results of swabs and actual biopsies (tissue samples) of the skin.
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Association between HS and hospitalization for psychiatric disorders
August 1, 2019
The researchers of this study are based in U.S.A. and aimed to find out if hidradenitis is linked with higher likelihood and costs of mental health disorders.
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Inter- and intrarater reliability of Hurley staging
August 1, 2019
This study, which was an international co-operation between departments in Germany, Denmark and Poland, was designed to check the agreement between different dermatologists, including those in training, on their rating of the stage of HS in 5 different patients on two separate occasions.
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Impact of HS on work loss, indirect costs and income
July 1, 2019
This study aimed to find out how the work life of people with HS was impacted compared to similar people without HS.
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Pyrin mutations in complex hidradenitis suppurativa
June 3, 2019
This study, performed by researchers from Turkey and Germany, looked at the role of a gene called MEFV gene in HS, using a group of 119 people with the disease.
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What’s the risk of lymphoma in people with HS?
May 1, 2019
This study was done to look at whether the inflammation from HS might increase the chance that someone’s immune system could go off the rails and cause lymphoma.
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Cost-savings in hidradenitis suppurativa
April 26, 2019
This study, undertaken at the ATTIKON University Hospital of Athens, Greece, suggests adalimumab could be a cost-effective and efficient treatment for HS.
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BAD guidelines for the management of HS (acne inversa) 2018
April 26, 2019
The British Association of Dermatologists commissioned a HS guideline development group composed of information specialists, a HS patient and carer, and UK clinicians including dermatologists, a dermatology nurse, plastic surgeon and general practitioner (GP). The group, based in the UK, were asked to produce treatment recommendations based on a systematic review of the evidence.
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Does Hidradenitis Suppurativa cause skin cancer?
April 1, 2019
Longstanding Hidradenitis Suppurativa (HS) can be associated with other complications, such as intestinal problems and skin cancer.
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Patients with self-reported HS in a cohort of Danish blood donors
April 1, 2019
The unique nature of HS makes it possible to diagnose the disease using questionnaires.
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Illness perceptions and health outcomes in HS
February 4, 2019
In this study from a specialised HS clinic in a large UK hospital, dermatologists collaborated with psychologists to establish for the first time, the relationships between illness perceptions and health outcomes.
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Complement in hidradenitis suppurativa
August 24, 2018
This is a study on the pathogenesis (causes) of hidradenitis suppurativa (HS).
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Imbalanced Th17/Treg axis in hidradenitis suppurativa
August 24, 2018
The aim of this study from the German Universities of Osnabrück and Munich was to clarify whether obesity and smoking promote the Th17/Treg imbalance.
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Hidradenitis suppurativa treated with secukinumab
July 19, 2018
Medications targeting small proteins called cytokines could provide a possible treatment approach for HS in the future.
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Population-based Clinical Practice Research Datalink study using algorithm modelling to identify the true burden of hidradenitis
April 18, 2018
Our study team based in the UK aimed to use UK electronic data recorded by General Practitioners (GPs) to identify known and previously undiagnosed cases of HS.
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Prevalence of hidradenitis suppurativa among patients with Down syndrome: a population-based cross-sectional analysis
March 29, 2018
In this study, we evaluated the commonness of hidradenitis suppurativa within a large group of patients who had Down syndrome, and we used another groups of patients that did not have Down syndrome to compare findings.
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Incidence of hidradenitis suppurativa among tobacco smokers: a population-based retrospective analysis in the U.S.A.
March 29, 2018
Despite a common belief that tobacco smoking increases the risk of developing the disease, the evidence linking the two is controversial.
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Towards global consensus on core outcomes for hidradenitis suppurativa research: an update from the HISTORIC consensus meetings
March 29, 2018
This study aimed to find out what clinical trials for HS should measure, such as symptoms (e.g. pain, itch), physical changes (e.g. skin redness or swelling), or impact on people's lives (e.g. quality of life).
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Interleukin-36 in hidradenitis suppurativa
March 29, 2018
Scientists from Germany investigated whether a cytokine called interleukin-36 (IL-36) might be important in hidradenitis suppurativa (HS).
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A phenotype combining hidradenitis suppurativa with Dowling–Degos disease caused by a founder mutation in PSENEN
February 18, 2018
In this present study, we showed a new genetic defect in PSENEN that can cause two diseases at once: Dowling-Degos disease and hidradenitis suppurativa.
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Hidradenitis suppurativa and electrocardiographic changes: a cross-sectional population study
January 22, 2018
The aim of this study from Denmark was to investigate this possible cardiovascular burden associated with HS influence on the heart's electrical activity.
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Keratinocytes and neutrophils are important sources of proinflammatory molecules in hidradenitis suppurativa
October 5, 2015
This study, from Germany, sought to identify the cellular sources of IL-17 in HS, and looked at a range of other factors that might contribute to the development of the disease, including the presence and source of other proteins that are involved in HS.
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Diagnostic delay in hidradenitis suppurativa is a global problem
July 21, 2015
In this study, 517 patients with HS and 516 patients with another skin disease, psoriasis, from 24 countries were asked about the time it took to first see a doctor and then receive a diagnosis.
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The Hidradenitis Suppurativa Priority Setting Partnership
June 5, 2014
According to the authors of this study, HS has been relatively neglected by society and medical research funding bodies, resulting in a lack of evidence to guide HS care. A Priority Setting Partnership (PSP) for HS was established following a model created by the James Lind Alliance which helps to bring patients, carers and clinicians together to identify and prioritise for research the treatment uncertainties which they agree are the most important.
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